Palliative Care Inches Toward Standard of Care

October 29, 2014

The Inaugural Palliative Care in Oncology Symposium made its debut in Boston on October 24, 2014. Jointly sponsored by the American Society of Clinical Oncology (ASCO), American Academy of Hospice and Palliative Medicine (AAHPM), American Society for Radiation Oncology (ASTRO) and the Multinational Association of Supportive Care in Cancer (MASCC), this marks the first major meeting of cancer specialists and clinicians who focus on relieving symptoms.

Palliative care is specialized medical treatment that focuses on providing patients with relief from the symptoms, pain, and stress of a serious illness. It improves quality of life for both the patient and the family.

Traditionally, palliative care has been accessed only toward the end of life. Many recent studies however, have shown that introducing it earlier into cancer patients’ care plans results in improved quality of life, living longer and lower medical costs. Patients and families may resist palliative services because they associate the term with hospice and end of life. This problem of semantics often results in patients not being adequately treated for debilitating symptoms such as pain, nausea and fatigue.

It’s time to correct these misconceptions and help patients access the care they need, be it medical, emotional, spiritual, financial or otherwise. Through palliative care, people affected by cancer will benefit from improved symptom management, reduced stress and overall, a better quality of life.

Want to know more? Visit cancer.gov or cancer.net for additional resources.

Our guest blogger is CancerCare Chief Executive Officer Patricia J. Goldsmith.

 


Financial Assistance Available for People with Pancreatic Cancer

October 27, 2014

 

CancerCare recently announced a new national grant, generously provided by Celgene, available for people diagnosed with pancreatic cancer.

The “CancerCare Get You There” program will assist both men and women with transportation costs associated with their cancer treatment. Applicants must be diagnosed with pancreatic cancer and meet additional eligibility guidelines. To apply or learn more, call 800-813-HOPE (4673).

“A cancer diagnosis is a very difficult time for many families financially and costs such as transportation can oftentimes prevent our clients from receiving proper treatment,” said CancerCare Director of Patient Assistance Programs Jane Levy. “Thanks to Celgene, these individual grants will help to alleviate some of the financial stress for people coping with pancreatic cancer.”

CancerCare offers additional services for anyone affected by pancreatic cancer, including support groups, counseling, podcasts and educational materials.

 

 


A Conversation with CancerCare CEO Patricia J. Goldsmith

October 16, 2014

 The latest edition of  The ASCO Post features a conversation with CancerCare’s CEO Patricia J. Goldsmith. In the article, Goldsmith shares her personal story and her exciting vision for the organization. Please enjoy a few of our favorite excerpts from the article.

Our CEO’s Unique Perspective

Eleven days before Patricia J. Goldsmith, joined CancerCare as its CEO last May, she received the unexpected news that she had early-stage colorectal cancer. While the diagnosis was shocking, Ms. Goldsmith said it gave her a unique perspective on what it means to have this serious disease and a greater understanding of the emotional and financial impact cancer has on the more than 170,000 people nationwide who turn to CancerCare each year for support.

“Getting my cancer diagnosis made the work we do at CancerCare very personal,” said Ms. Goldsmith. “Having cancer changed everything, including my outlook on what is important in life. I think getting the diagnosis just before starting my new position was meant to be, because it gave me an even greater appreciation of the important services the organization provides to people affected by this disease.”

About the Organization’s Vision

My overarching vision is to help the organization further expand its mission to provide support to anyone who has experienced a cancer diagnosis or been touched by cancer in some way.

About the Future of CancerCare

We are in a moment of transformation as an organization moving from what we currently are to what we will be in the future. Our ultimate aim is to be the most active support and advocacy organization in health care providing the highest-quality services to improve the lives of those affected by cancer.

To read more of the conversation, visit The ASCO Post.

 


Caribou Coffee Partners with CancerCare to Support Anyone Affected by Breast Cancer

October 1, 2014

For the third year, Caribou Coffee has partnered with CancerCare for a month-long promotion during which 10 percent of all Amy’s Blend Collection purchases benefit CancerCare’s free support services. The Amy’s Blend promotion honors Caribou Coffee’s original roastmaster Amy Erickson who lost her battle with cancer in 1995.

From September 27, 2014 to October 31, 2014, Caribou Coffee will donate 10% percent of all Amy’s Blend Collection purchases directly to CancerCare with a minimum of $100,000 donation to CancerCare.

“There are more than 2.8 million women in our country who currently are battling or have battled breast cancer,” CancerCare CEO, Trish Goldsmith. “We are thrilled Caribou Coffee is joining us again this October to support and uplift our strong community of patients, survivors, families and friends.”

Caribou Coffee’s original roastmaster Amy Erickson

To learn more about Caribou Coffee Amy’s Blend, visit Amy’s Home.

 


Family Brings Holiday Cheer and Hope to Anyone Affected by Cancer

September 17, 2014

The Facilla’s home

John and Josephine Facilla have decorated their Long Island home for the past 35 holiday seasons. The display started off small and has grown to include more than 10,000 lights and an elaborate Santa’s Workshop.

“Decorating brings our family and the community together. Usually after Halloween I start putting the display up and I go crazy,” said John.

Josephine, a three-time cancer survivor, and her husband wanted to spread holiday cheer as well as make a difference for a cause close to their hearts.

Left to right: Josephine Facilla, John Facilla, Hunter Brignoli, Tom Brignoli, Donna-Marie Brignoli, Sophia Facilla, John A. Facilla, Ava Facilla, Denise Facilla, and in the arms of Donna-Marie, Charli and Brooke Brignoli.

 

“We had the inspiration to do something big for the holidays one year,” said Josephine. “Our neighbor was very sick with cancer and someone gave them the number for CancerCare. It was unbelievable. They gave them everything and anything that they needed. It was like nothing we’d ever seen before, so we decided that was the route we were taking.”

For more than 20 years, the Facilla’s display has featured a collection box for donations, with proceeds going directly to CancerCare’s free support services. They have since raised more than $10,000 for people affected by cancer.

“We have people come that have cancer, so I can talk with them and relate,” says Josephine.

The Facilla family adds something new to the display each year, but the mission of the project remains the same – to bring cheer to the community and to make a difference in the lives of people with cancer.

 


O’Neill’s Irish Pub Golf Outing Raises $175,000 for People Affected by Cancer

September 2, 2014

Ollie O’Neill moved to the states from Dublin in 1995 and pursued his dream of bringing the Irish pub culture to his new hometown, Norwalk, CT. He opened O’Neill’s Irish Pub and Restaurant on St. Patrick’s Day of 1999. Not only did he want to provide authentic food and drinks to the community, Ollie also wanted make a lasting difference in the lives of people affected by cancer.

Ollie O’Neill at this year’s event.

“I initially wanted to do something for CancerCare because my sister was diagnosed with leukemia when she was nine,” said Ollie. “We all felt that this was a cause we wanted to help because CancerCare was right here in town and we’d heard about some of the great services. I feel that if we had had these services when we found out about my sister’s diagnosis, it would have helped quite a bit.”

In 2007, O’Neill’s Irish Pub established the first annual Golf Outing. Ollie and his team of supporters have raised an astonishing $175,000 over the past 15 years.

“We figured it was a good way to get the community involved and give back. Get out there and play, eat, drink and have fun for a good cause,” said Ollie. “It is amazing. All we do is host the event and invite people to participate. They just want to contribute. I’ve sold out every year.”

“The event that O’Neill’s Pub and Restaurant hosts each year to benefit CancerCare makes a discernible difference in the lives of people affected by cancer in the Norwalk community and beyond,” said Regional Director of the CancerCare Connecticut Office Sandra Tripodi, LCSW, ACSW. “Whether it is a person who is in need of a wig, a child who is struggling to make sense of what cancer means in their family, or someone in need of financial assistance to address treatment related barriers, we depend upon our community of support to make our free services available.”

Are interested in making a difference in the lives of people facing cancer? Get your friends, family members, co-workers, neighbors, and community involved in supporting CancerCare‘s free services through Team CancerCare. There is no limit to the kinds of events you can organize.

 

 

 


The Benefits of Joining a Support Group

August 27, 2014

People with cancer and their caregivers sometimes feel that other people, unless they’ve been through it themselves, don’t really understand or “get it.” Or they don’t want to burden their families or friends with their worries: Why do I feel so bad? What will happen to me?

Joining a support group is an opportunity to meet with people who are going through similar experiences. By expressing your thoughts and feelings and sharing what you’ve learned, you may begin to feel less alone. Group members exchange valuable information and tips with one other including where to find reliable medical information, how to communicate better with their doctors, and what useful resources are available. Groups provide a safe space in which individuals can voice their feelings, concerns, and anxieties without fear of judgment or reproach.

One support group member shares her experience and gratitude. “The people in this group have become family to me. They understand the roller coaster ride. I can cry here and I can share tender stories here. I can share the rays of sunshine as they come. I am grateful to CancerCare for facilitating this group – I don’t know what I would have done without it.”

All of CancerCare’s support groups are led by oncology social workers. These professionals help the group achieve its goal of providing support to members, and can also help members individually as needed. Groups meet face-to-face, over the telephone and online.

If you’re feeling alone and needing information and emotional support, a group might be a valuable way of connecting with people to help you cope with your situation. CancerCare has many free support groups that may be a fit for you or your loved one. And if a support group is not a good fit, you may consider individual counseling.


AVONCares Provides Help for Women Facing Cancer

August 18, 2014

Cancer treatment not only includes medical expenses, but also practical costs such as transportation to and from treatment, home care and child care. Thanks to AVONCares, a partnership between CancerCare and the Avon Foundation for Women, financial assistance and other services have been made available to underserved women facing cancer in all 50 states. Over the past 14 years, AVONCares has provided more than $21.6 million to help these women cope with cancer.

The financial impact of a cancer diagnosis is oftentimes overlooked and under-discussed. The inability to go to work and provide for one’s family, paired with medical and practical costs, can result in patients feeling lost and unsure of where to turn for help.

From Kathleen, a recent AVONCares grant recipient: “I never dreamed I would be in this position of being diagnosed with cancer and asking for help, because I was always the one giving to others. God bless you and your organization for your kindness.”

Support for this program is made possible by funds raised through the Avon Walk for Breast Cancer Series.

Remember to reach out for support—medical debt can cause emotional stress, but there are resources available to provide relief. Learn more about CancerCare’s financial assistance services.

 


Susan’s Story of Help and Hope

August 14, 2014

The family at Henri’s 5th birthday party

Susan faced many challenges after her husband Chris was diagnosed with stage 4 colon cancer. One of the greatest was figuring out the best way to talk about cancer with their five-year-old son Henri.

“Henri knows that something is wrong and I’m sure he knows more than he is able to articulate. He knows that daddy is sick,” shares Susan.

After searching online, Susan called CancerCare in search of resources to help Henri understand and cope. An oncology social worker suggested The Comfort Pillow Activity to help the family communicate with one another and feel more comfortable talking about cancer. The Activity includes a pillow that can be customized and designed to bring a child comfort, as well as a booklet and additional resources that help to initiate therapeutic conversations.

“CancerCare and their resources have been so helpful. Chris and Henri sat on the floor together, spread out all of the kit materials and colored on the pillow. It was a really great exercise for Chris – a really special bonding moment and it’s something they’ll always have together.”

The pillow features Henri’s favorite things including superheroes, rainbows, planets and rocket ships. “Henri sleeps with the pillow every night. He traced hearts on one side and wrote ‘Henri, Dad and Mom’ in each of the hearts.”

Sue feels the activity has brought the family closer and has allowed them to have difficult conversations about cancer. “When Chris has to leave for chemotherapy, he is oftentimes gone before Henri wakes up and doesn’t return until after Henri goes to bed. On those days, Henri can pull out the pillow and know that he is loved and can read the special message on an enclosed heart from his dad.”

 

 


Coping with Cancer as an Older Adult

August 7, 2014

Older adults have numerous strengths, including knowledge and experience, that can assist them in coping with a cancer diagnosis. Simultaneously, they may face unique challenges that affect their ability to make health care decisions and receive quality care.

Today, older adults find themselves in an increasingly complex medical system where they are expected to take an active role in managing their care when they may be unable to do so. Access to medical information through technology may prove confusing and cause patients to refrain from asking key questions about their care or feel unsure about where to access important and accurate health information.

It is essential that older adults and their loved ones be able to openly and honestly discuss their care with their doctors and any potential difficulties that may arise. CancerCare has valuable tips for communicating with your health care team.

Many older patients struggle with changes related to aging and becoming more dependent on others. As oncology health professionals, we are in the unique position to provide care and support. To learn more, please call 800-813-HOPE (4673).

Our guest blogger Sarah Kelly, LSCW is coordinator for Older Adult Services at CancerCare