Palliative Care Inches Toward Standard of Care

October 29, 2014

The Inaugural Palliative Care in Oncology Symposium made its debut in Boston on October 24, 2014. Jointly sponsored by the American Society of Clinical Oncology (ASCO), American Academy of Hospice and Palliative Medicine (AAHPM), American Society for Radiation Oncology (ASTRO) and the Multinational Association of Supportive Care in Cancer (MASCC), this marks the first major meeting of cancer specialists and clinicians who focus on relieving symptoms.

Palliative care is specialized medical treatment that focuses on providing patients with relief from the symptoms, pain, and stress of a serious illness. It improves quality of life for both the patient and the family.

Traditionally, palliative care has been accessed only toward the end of life. Many recent studies however, have shown that introducing it earlier into cancer patients’ care plans results in improved quality of life, living longer and lower medical costs. Patients and families may resist palliative services because they associate the term with hospice and end of life. This problem of semantics often results in patients not being adequately treated for debilitating symptoms such as pain, nausea and fatigue.

It’s time to correct these misconceptions and help patients access the care they need, be it medical, emotional, spiritual, financial or otherwise. Through palliative care, people affected by cancer will benefit from improved symptom management, reduced stress and overall, a better quality of life.

Want to know more? Visit cancer.gov or cancer.net for additional resources.

Our guest blogger is CancerCare Chief Executive Officer Patricia J. Goldsmith.

 


Financial Assistance Available for People with Pancreatic Cancer

October 27, 2014

 

CancerCare recently announced a new national grant, generously provided by Celgene, available for people diagnosed with pancreatic cancer.

The “CancerCare Get You There” program will assist both men and women with transportation costs associated with their cancer treatment. Applicants must be diagnosed with pancreatic cancer and meet additional eligibility guidelines. To apply or learn more, call 800-813-HOPE (4673).

“A cancer diagnosis is a very difficult time for many families financially and costs such as transportation can oftentimes prevent our clients from receiving proper treatment,” said CancerCare Director of Patient Assistance Programs Jane Levy. “Thanks to Celgene, these individual grants will help to alleviate some of the financial stress for people coping with pancreatic cancer.”

CancerCare offers additional services for anyone affected by pancreatic cancer, including support groups, counseling, podcasts and educational materials.

 

 


A Conversation with CancerCare CEO Patricia J. Goldsmith

October 16, 2014

 The latest edition of  The ASCO Post features a conversation with CancerCare’s CEO Patricia J. Goldsmith. In the article, Goldsmith shares her personal story and her exciting vision for the organization. Please enjoy a few of our favorite excerpts from the article.

Our CEO’s Unique Perspective

Eleven days before Patricia J. Goldsmith, joined CancerCare as its CEO last May, she received the unexpected news that she had early-stage colorectal cancer. While the diagnosis was shocking, Ms. Goldsmith said it gave her a unique perspective on what it means to have this serious disease and a greater understanding of the emotional and financial impact cancer has on the more than 170,000 people nationwide who turn to CancerCare each year for support.

“Getting my cancer diagnosis made the work we do at CancerCare very personal,” said Ms. Goldsmith. “Having cancer changed everything, including my outlook on what is important in life. I think getting the diagnosis just before starting my new position was meant to be, because it gave me an even greater appreciation of the important services the organization provides to people affected by this disease.”

About the Organization’s Vision

My overarching vision is to help the organization further expand its mission to provide support to anyone who has experienced a cancer diagnosis or been touched by cancer in some way.

About the Future of CancerCare

We are in a moment of transformation as an organization moving from what we currently are to what we will be in the future. Our ultimate aim is to be the most active support and advocacy organization in health care providing the highest-quality services to improve the lives of those affected by cancer.

To read more of the conversation, visit The ASCO Post.

 


Caribou Coffee Partners with CancerCare to Support Anyone Affected by Breast Cancer

October 1, 2014

For the third year, Caribou Coffee has partnered with CancerCare for a month-long promotion during which 10 percent of all Amy’s Blend Collection purchases benefit CancerCare’s free support services. The Amy’s Blend promotion honors Caribou Coffee’s original roastmaster Amy Erickson who lost her battle with cancer in 1995.

From September 27, 2014 to October 31, 2014, Caribou Coffee will donate 10% percent of all Amy’s Blend Collection purchases directly to CancerCare with a minimum of $100,000 donation to CancerCare.

“There are more than 2.8 million women in our country who currently are battling or have battled breast cancer,” CancerCare CEO, Trish Goldsmith. “We are thrilled Caribou Coffee is joining us again this October to support and uplift our strong community of patients, survivors, families and friends.”

Caribou Coffee’s original roastmaster Amy Erickson

To learn more about Caribou Coffee Amy’s Blend, visit Amy’s Home.

 


CancerCare Awarded $1.5 Million Grant from Susan G. Komen

September 30, 2014

 

CancerCare has received a $1.5 million grant to assist people diagnosed with breast cancer. The generous grant will support Linking A.R.M.S., a CancerCare program in partnership with Susan G. Komen. Linking A.R.M.S. provides financial assistance for breast cancer patients for hormonal and oral chemotherapy, pain and anti-nausea medication, child care, transportation, lymphedema care and durable medical equipment.

“We are tremendously grateful for the continued support of Susan G. Komen,” said CancerCare CEO Patricia J. Goldsmith. “This substantial grant will provide help and hope to thousands of people diagnosed with breast cancer during what may be one of the most overwhelming times in their lives. Costs such as transportation and child care can oftentimes prevent our clients from receiving proper treatment and, thanks to Susan G. Komen, this will now be less of an obstacle for thousands of individuals.”

“A breast cancer diagnosis is a life-altering event, and while patients are making difficult decisions about their medical care, day-to-day needs like childcare and transportation can be equally challenging. Last year alone, CancerCare provided direct financial assistance to 1,356 breast cancer patients undergoing treatment. We’re pleased to again award funding to this important program to allow them to continue this work,” said President and CEO of Susan G. Komen, Judith A. Salerno, M.D., M.S.

Those interested in learning more or applying for financial assistance can visit our website or call 800-813-HOPE (4673).

“Words cannot express the appreciation I have for the financial assistance I have desperately needed,” shares Kimberly, a recent Susan G. Komen grant recipient. “What a huge relief to know there is help. What a privilege it is to know that CancerCare does care. A huge weight has lifted from my shoulders and my heart.”

 


Sue’s Story of Help and Hope

September 25, 2014

Sue with and her children Emily and Andy

Sue began advocating for emotional support after her husband, Rob, advanced to stage 4 melanoma in 2009. He’d been at stage 3 for almost three years, long enough for his doctor to be optimistic and for the family to feel more confident about the future. The news, received in the emergency room where he’d been taken in response to a seizure, came as a huge blow. In the weeks and months that followed, Rob desperately wanted counseling to help him cope.

“I wish I’d known about CancerCare sooner,” said Sue. “I spent whole days identifying and taking Rob to psychologists within his health plan, but we found that none of them understood his emotional state.”

She was ultimately referred to CancerCare for her own support. “When I finally learned about the CancerCare phone and online caregiver support groups, I seized them like a lifeline and was rewarded with both coping skills and lifelong friendships.”

But Rob, by then very advanced, could not manage counseling by phone. When he passed away in 2010, Sue again sought out resources to help her and their children Emily and Andy, then ages six and three, process and heal through the difficult time. That’s when she learned the CancerCare New Jersey office was nearby. She says it was life-changing.

Sue began receiving in-person bereavement counseling. She and her children also attended the Healing Hearts Bereavement Camp, picnics, holiday parties and other activities.

Andy at CancerCare’s Healing Hearts Bereavement Camp

“I think bereavement therapy is important for both the kids and the surviving spouse. The CancerCare family program was incredibly supportive for us. We benefited from group activities where we all shared our experiences and were guided by the counselors,” says Sue. “Emily told me several times it meant a lot that she could talk with and play with other kids who had also lost a parent. It was hard for her to interact with kids at school who didn’t understand, and she felt removed from them; different. I think it gave Andy words to express his loss in preschool.”

For families facing similar challenges, Sue suggests taking time to be together as a family and create special memories together. She also stresses the importance of managing the continuum of care, asking others for help when necessary, and having a sense of humor even during the hard times. “It’s critical to hang together as a family unit. At the same time, don’t be afraid to ask your friends for help and to accept it! And whenever things get stressful, try not to lose your sense of humor and perspective.”

“We have healed and grown, basking in the warmth and support of CancerCare’s wonderful, caring staff and the ability to share with other families in similar situations. CancerCare continues to be part of our lives as we move into a new role, drawing on our experiences to help other families embarking on this journey.”

In Rob’s honor, Sue formed Team Chevrier to raise critical funds for anyone affected by cancer in the CancerCare Walk/Run for Hope in Paramus, New Jersey. Learn more or donate to Sue’s team by visiting http://community.cancercare.org/robswalk


Family Brings Holiday Cheer and Hope to Anyone Affected by Cancer

September 17, 2014

The Facilla’s home

John and Josephine Facilla have decorated their Long Island home for the past 35 holiday seasons. The display started off small and has grown to include more than 10,000 lights and an elaborate Santa’s Workshop.

“Decorating brings our family and the community together. Usually after Halloween I start putting the display up and I go crazy,” said John.

Josephine, a three-time cancer survivor, and her husband wanted to spread holiday cheer as well as make a difference for a cause close to their hearts.

Left to right: Josephine Facilla, John Facilla, Hunter Brignoli, Tom Brignoli, Donna-Marie Brignoli, Sophia Facilla, John A. Facilla, Ava Facilla, Denise Facilla, and in the arms of Donna-Marie, Charli and Brooke Brignoli.

 

“We had the inspiration to do something big for the holidays one year,” said Josephine. “Our neighbor was very sick with cancer and someone gave them the number for CancerCare. It was unbelievable. They gave them everything and anything that they needed. It was like nothing we’d ever seen before, so we decided that was the route we were taking.”

For more than 20 years, the Facilla’s display has featured a collection box for donations, with proceeds going directly to CancerCare’s free support services. They have since raised more than $10,000 for people affected by cancer.

“We have people come that have cancer, so I can talk with them and relate,” says Josephine.

The Facilla family adds something new to the display each year, but the mission of the project remains the same – to bring cheer to the community and to make a difference in the lives of people with cancer.

 


Coping When Your Loved One Has Cancer

September 5, 2014

Resources for Adolescents and Young Adults

Most teens and young adults face the everyday challenges of school, jobs and relationships. But if you are a teen or young adult who is also caring for a loved one with cancer, you know firsthand how a cancer diagnosis can bring on a whole new set of concerns. You may suddenly find yourself adjusting to the role of caregiver; someone who provides emotional and practical support. Here are some things you can do to help you cope:

Keep in mind that being a caregiver can mean many things. As an adolescent or young adult, you may not be the primary caregiver, but know that your role is still valuable. Whether you are thousands of miles away from your loved one or living in the same household, it is important that you are involved in ways that are meaningful both for yourself and the person with cancer. You can help your loved one by making phone calls, going to doctors’ appointments, cooking a meal, or offering emotional support.

Communicate with your loved one. Having an open dialogue with your loved one can help gain mutual understanding and can clearly outline your role as a caregiver. Talk to each other about the changes that are happening and how you both are coping. Acknowledge that you may see things differently, and explore ways to come together when you can.

Make your care a priority, too. Maintaining your own responsibilities, commitments, and lifestyle are all important in ensuring that your needs are met as you care for a loved one. Take advantage of down time to read a book, take a walk, listen to music, meditate, or spend time with friends.

Seek support. There are more people affected by cancer at your age than you may think. Connecting to a support group can help ease feelings of isolation, provide emotional and practical support, and help maintain aspects of your life that were important before cancer. Individual counseling with a professional oncology social worker can help you prioritize your responsibilities, set goals, and find better ways to cope with being a caregiver.

Remember that you are not alone. CancerCare has additional free resources tailored specifically for the needs of adolescents and young adults.

 

 


O’Neill’s Irish Pub Golf Outing Raises $175,000 for People Affected by Cancer

September 2, 2014

Ollie O’Neill moved to the states from Dublin in 1995 and pursued his dream of bringing the Irish pub culture to his new hometown, Norwalk, CT. He opened O’Neill’s Irish Pub and Restaurant on St. Patrick’s Day of 1999. Not only did he want to provide authentic food and drinks to the community, Ollie also wanted make a lasting difference in the lives of people affected by cancer.

Ollie O’Neill at this year’s event.

“I initially wanted to do something for CancerCare because my sister was diagnosed with leukemia when she was nine,” said Ollie. “We all felt that this was a cause we wanted to help because CancerCare was right here in town and we’d heard about some of the great services. I feel that if we had had these services when we found out about my sister’s diagnosis, it would have helped quite a bit.”

In 2007, O’Neill’s Irish Pub established the first annual Golf Outing. Ollie and his team of supporters have raised an astonishing $175,000 over the past 15 years.

“We figured it was a good way to get the community involved and give back. Get out there and play, eat, drink and have fun for a good cause,” said Ollie. “It is amazing. All we do is host the event and invite people to participate. They just want to contribute. I’ve sold out every year.”

“The event that O’Neill’s Pub and Restaurant hosts each year to benefit CancerCare makes a discernible difference in the lives of people affected by cancer in the Norwalk community and beyond,” said Regional Director of the CancerCare Connecticut Office Sandra Tripodi, LCSW, ACSW. “Whether it is a person who is in need of a wig, a child who is struggling to make sense of what cancer means in their family, or someone in need of financial assistance to address treatment related barriers, we depend upon our community of support to make our free services available.”

Are interested in making a difference in the lives of people facing cancer? Get your friends, family members, co-workers, neighbors, and community involved in supporting CancerCare‘s free services through Team CancerCare. There is no limit to the kinds of events you can organize.

 

 

 


The Benefits of Joining a Support Group

August 27, 2014

People with cancer and their caregivers sometimes feel that other people, unless they’ve been through it themselves, don’t really understand or “get it.” Or they don’t want to burden their families or friends with their worries: Why do I feel so bad? What will happen to me?

Joining a support group is an opportunity to meet with people who are going through similar experiences. By expressing your thoughts and feelings and sharing what you’ve learned, you may begin to feel less alone. Group members exchange valuable information and tips with one other including where to find reliable medical information, how to communicate better with their doctors, and what useful resources are available. Groups provide a safe space in which individuals can voice their feelings, concerns, and anxieties without fear of judgment or reproach.

One support group member shares her experience and gratitude. “The people in this group have become family to me. They understand the roller coaster ride. I can cry here and I can share tender stories here. I can share the rays of sunshine as they come. I am grateful to CancerCare for facilitating this group – I don’t know what I would have done without it.”

All of CancerCare’s support groups are led by oncology social workers. These professionals help the group achieve its goal of providing support to members, and can also help members individually as needed. Groups meet face-to-face, over the telephone and online.

If you’re feeling alone and needing information and emotional support, a group might be a valuable way of connecting with people to help you cope with your situation. CancerCare has many free support groups that may be a fit for you or your loved one. And if a support group is not a good fit, you may consider individual counseling.